The Questionnaire
INDEX to Questionnaire Components
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This short INDEX allows for easier navigating.
Here are links to the various parts of the questionnaire's formulation, explained :
The Complete Questionnaire Structure
Response of others to respondent's illness
Advice to others who are also ill with "long-term" COVID-19,
(includes, Advice to Healthcare Practitioners).
The above are not the Answers, but the Questionnaire's Formulation explained.
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Advice to others with the illness, and to those caring for the patient
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An opportunity for respondents to actually respond in written text, and beyond simply making choices.
Response length was not limited.
As indicated, this was presented as a request for advice for others affected with "long-term" COVID-19.
That is followed with a request for advice to be shared with healthcare providers at any or all levels of contact.
The option of skipping these questions was given. Most did not.
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Hopefully, the preceding pages have placed this Questionnaire on "Long-term" COVID-19 in a useful perspective, and a clearer light.
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For those who would be respondent candidates for this survey, that is still possible. But know that your answers will be kept separate from those of the first or preliminary respondents. Any effort to respond is appreciated, and results will eventually serve a purpose I am sure. If you elect to take the questionnaire because you are a "long-term" COVID-19 patient, please do so by following this link below.
If you have decided to participate, do not read the next section just yet since it will certainly impact on your answers. But please come back when you have completed giving your answers. At the end of taking the questionnaire, you will be able to see how others responded. Thank you.
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Responses to illness
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Certainly linked to the prior question's addressing emotional components of the "long-term" COVID-19 illness, their is a social or societal component that one would like to investigate to be better understood.
If John Donne was right in writing "No Man is An Island," (we can assume equally true for a woman), how does the "long-term" COVID-19 illness impact relationships with others?
Clearly not a joy for the patient, those in contact with the patient who now presents with "long-term" COVID-19 may behave differently than they did before. Perhaps not. We'll see.
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Emotional components of "long-term" COVID-19
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I have never had myself, nor treated a patient who had, a physical illness without an emotional component.
Step on a nail and you'll see what I mean.
Offer a patient an operation urgently needed for a perforated appendicitis or blocked airway requiring a tracheostomy, and one is witness to the emotional components as well.
Difficulties arise if one forgets that. The outcome for the patient is almost certainly going to be less good.
Of course it's a question of balance. Acute schizophrenia due to a drug overdose, may look to be much less physical, though it is that as well. Stepping on a nail may not require a promonged period of emotional adjustment but that depends on the patient. When does an "emotional adjustment" appear to be taking just a bit too long?
That is very much the current environment that the questionnaire seeks to explore.
It is already well established that some approaches to this illness are based in it being essentially all emotional. Others insist that it is completely physical with no significant emotional component.
The questionnaire seeks to explore this domain and identify a balance point if possible.
Sources of support for those respondents who identified psychological symptoms are also explored.
But more importantly, how effective are these sources of support in meeting emotional needs?
An assessment of the ability to "bounce back" after this illness, or even during, is explored through self-assessment of levels of resilience.
Quality of Life encompasses many components. Certainly one's health seems a primordial influence on one's satisfaction with one's circumstance in life. We've compared the respondent's sense of this before, during the illness and on the day the questionnaire was taken. While sick, most would quickly respond that Quality of Life has been impacted and diminished. This to varying degrees one would guess. But how about 1 Year after the anticipated end of the illness? Can this illness impact on hopefullness for a satisfactory level of Quality of Life? We'll see.
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Physical findings
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Clearly the best way to approach a search for physical findings is to conduct a physical examination of the patient guided by the patient's history.
If a patient presents with a history strongly suggestive of involvement by an illness with the patient's cardiovascular system, it is probable that a complete neurological examination will not be done. But it is essential to include parts of that examination that speak to a cardiovascular problem. Syncope (passing out) is one example where both parts of a complete exam would be demanded.
So in this group of patients, our respondents, distance and transmissibility of the illness quickly appear as impediments if actual access for a physical examination was possible. Such "exams" are now commonly conducted in a telephone interview. This "solution" may have as many or more limitations as our questionnaire, especially since such exchanges are often rushed, when the questionnaire need not be. So we have allowed the patient, in one sense to do basic components of assessing physical findings, and within the limits of the questionnaire.
The longer list of symptoms was regrouped into an organ systems approach.
Degree of physical limitation associaed with this illness was also sought after. Movement is essential to human existence. How has this illness impacted on such activity?
In both approaches to the impact of the illness on physical findings, responses have suggested quite useful distinctions.
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